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PCORI Urea Cycle Disorder Study

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details. Identifier: NCT02740153
Recruitment Status : Active, not recruiting
First Posted : April 15, 2016
Last Update Posted : April 1, 2019
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
National Center for Advancing Translational Science (NCATS)
Patient-Centered Outcomes Research Institute
The George Washington University Milken Institute School of Public Health (GWU)
The National Urea Cycle Disorders Foundation (NUCDF)
Studies of Pediatric Liver Transplantation (SPLIT)
Information provided by (Responsible Party):
Nicholas Ah Mew, Children's Research Institute

Results Submitted - Not Posted on
Results information has been submitted to by the sponsor or investigator, but is not yet publicly available (or "posted") on The submitted information may not be available if it is pending Quality Control (QC) Review by the National Library of Medicine (NLM) or if issues identified during QC review are being addressed or corrected by the sponsor or investigator. NLM's limited QC review assesses for apparent errors, deficiencies, or inconsistencies. NLM staff do not verify the scientific validity or relevance of the submitted information.
Recruitment Status : Active, not recruiting
Estimated Primary Completion Date : June 10, 2019
Estimated Study Completion Date : June 10, 2020
Submission Cycle Results Submitted to Results Returned after Quality Control Review
1 June 30, 2019
July 25, 2019