Twitter Based Social Support for Hispanic and Black Dementia Caregivers (Tweet-S2)
|The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.|
|ClinicalTrials.gov Identifier: NCT03865498|
Recruitment Status : Not yet recruiting
First Posted : March 7, 2019
Last Update Posted : April 13, 2020
|Condition or disease||Intervention/treatment||Phase|
|Loneliness Emotional Stress||Behavioral: Twitter for Hispanic caregivers Behavioral: Twitter for African American caregivers||Not Applicable|
|Study Type :||Interventional (Clinical Trial)|
|Estimated Enrollment :||800 participants|
|Intervention Model:||Parallel Assignment|
|Masking:||None (Open Label)|
|Primary Purpose:||Supportive Care|
|Official Title:||Using Twitter to Enhance the Social Support of Hispanic and Black Dementia Caregivers|
|Estimated Study Start Date :||September 2021|
|Estimated Primary Completion Date :||November 2022|
|Estimated Study Completion Date :||November 2022|
Experimental: Hispanic dementia caregivers
De-identified followers of our Hispanic dementia caregiver Twitter network will receive messages from the network (Twitter for Hispanic caregivers' intervention).
Behavioral: Twitter for Hispanic caregivers
This group will be asked to follow and use (i.e., retweet, reply, like) our Hispanic Twitter network for social support
Experimental: African American dementia caregivers
De-identified followers of our African American dementia caregiver Twitter network will receive messages from the network (Twitter for African American caregivers' intervention).
Behavioral: Twitter for African American caregivers
This group will be asked to follow and use (i.e., retweet, reply, like) our African American Twitter network for social support.
- Fraction of isolates [ Time Frame: 12 months ]% of the people who do not engage Twitter activities (i.e., retweet, reply, like, post) within the Twitter network for dementia caregivers: macro-level. 0% indicates no social isolates and 100% indicates all users with no Twitter activities.
- Emotional valence score [ Time Frame: 12 months ]Emotional valence (macro level) detected from text data (e.g., "This is so helpful" - emotion score +4, "I am sad"- emotion score -6). Emotional valence score ranges from -10 to +10; -10 indicates negative valence (bad) and +10 indicates positive valence (good).
- Number of auto-detected small groups [ Time Frame: 12 months ]Meso level: number of small group automatically detected based on Twitter activities (i.e., retweet); for example 0 means no small-group activity detected, 7 small groups mean seven distinct cliques/grouping activities detected where the users are communicating, supporting and responding within our Twitter network.
- Number of individual posting activities with balanced communication type [ Time Frame: 12 months ]Micro level: balanced communication triad, 2 or 3 people responding and communicating with equal or similar frequency; 0 reflects non-optimal communication indicating domination, avoidance or ignorance. 8 means there are 8 triads who maintain healthy communication.
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT03865498
|Contact: Sunmoo Yoon, PhDfirstname.lastname@example.org|
|United States, New York|
|New York, New York, United States, 10032|
|Contact: Sunmoo Yoon, PhD 212-300-7081 email@example.com|
|Principal Investigator: Sunmoo Yoon, PhD|
|Principal Investigator:||Sunmoo Yoon, PhD||Associate Research Scientist in the Department of Medicine|