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Alzheimer's Prevention Registry: A Program to Accelerate Enrollment Into Studies (APR)

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.
 
ClinicalTrials.gov Identifier: NCT02022943
Recruitment Status : Recruiting
First Posted : December 30, 2013
Last Update Posted : July 20, 2022
Sponsor:
Information provided by (Responsible Party):
Jessica Langbaum, PhD, Banner Health

Study Description
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Brief Summary:
The Alzheimer's Prevention Registry (www.endALZnow.org) will collect contact and demographic information on individuals. The objective is to provide information the latest news and advances in Alzheimer's prevention research, and to inform enrollees about research studies in their community. Enrolled individuals will receive regular email communications. As research studies become available, individuals will be notified via email with information as to how proceed should they be interested. Registry enrollees are under no obligation to participate in a research study. Study opportunities may include surveys, healthy lifestyle interventions (e.g., diet, exercise), memory & thinking tests, brain scans, and investigational drug trials. To join the Registry, please visit www.endALZnow.org

Condition or disease
Alzheimer's Disease Dementia

Study Design
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Study Type : Observational [Patient Registry]
Estimated Enrollment : 500000 participants
Observational Model: Other
Time Perspective: Other
Target Follow-Up Duration: 20 Years
Official Title: Alzheimer's Prevention Registry
Study Start Date : May 2012
Estimated Primary Completion Date : January 2030
Estimated Study Completion Date : January 2030

Resource links provided by the National Library of Medicine


Groups and Cohorts
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Outcome Measures
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Primary Outcome Measures :
  1. Number of individuals enrolled into Alzheimer's prevention studies [ Time Frame: 16 years ]

Secondary Outcome Measures :
  1. Number of individuals referred to Alzheimer's prevention research studies / sites [ Time Frame: 16 years ]

Other Outcome Measures:
  1. Total number enrolled into the Alzheimer's Prevention Registry [ Time Frame: 16 years ]

Eligibility Criteria
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Information from the National Library of Medicine

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.


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Ages Eligible for Study:   18 Years to 110 Years   (Adult, Older Adult)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   Yes
Sampling Method:   Non-Probability Sample
Study Population
Anyone who meets entry criteria is eligible to join the Registry. We anticipate 250,000 individuals will join.
Criteria

Inclusion Criteria:

  • Must be able to accept the Alzheimer's Prevention Registry website terms and conditions

Exclusion Criteria:

  • None
Contacts and Locations
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Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT02022943


Contacts
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Contact: Nellie High, MA 1-888-STOP-ALZ info@endALZnow.org

Locations
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United States, Arizona
Banner Alzheimer's Institute Recruiting
Phoenix, Arizona, United States, 85006
Principal Investigator: Jessica Langbaum, PhD         
Sponsors and Collaborators
Banner Health
Investigators
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Principal Investigator: Jessica Langbaum, PhD Banner Alzheimer's Institute
More Information
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Additional Information:

Publications of Results:

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Responsible Party: Jessica Langbaum, PhD, Director, Alzheimer's Prevention Initiative, Banner Health
ClinicalTrials.gov Identifier: NCT02022943    
Other Study ID Numbers: APR
First Posted: December 30, 2013    Key Record Dates
Last Update Posted: July 20, 2022
Last Verified: July 2022
Keywords provided by Jessica Langbaum, PhD, Banner Health:
Alzheimer's
prevention
Additional relevant MeSH terms:
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Alzheimer Disease
Dementia
Brain Diseases
Central Nervous System Diseases
Nervous System Diseases
 Tauopathies
Neurodegenerative Diseases
Neurocognitive Disorders
Mental Disorders