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A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details. Identifier: NCT01465061
Recruitment Status : Completed
First Posted : November 4, 2011
Last Update Posted : November 4, 2011
Philippine Dermatological Society
Information provided by (Responsible Party):
Charlene U. Ang-Tiu, University of the Philippines

Brief Summary:
With the rise of usage of the internet, online social networks have recently been gaining popularity. Joining these groups can be beneficial to patients with chronic medical illness, such as psoriasis.This was a cross-sectional online survey of psoriasis patients in the Philippines who are members of online support groups. The survey was conducted for a period of three months.The purpose of the research project was to describe the demographics, disease characteristics, activities and benefits of online support groups to Filipino patients with psoriasis. The extent to which members experience empowering processes and outcomes was also evaluated.

Condition or disease Intervention/treatment
Psoriasis Behavioral: Online support group

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Study Type : Observational
Actual Enrollment : 124 participants
Observational Model: Ecologic or Community
Time Perspective: Cross-Sectional
Official Title: A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis
Study Start Date : February 2011
Actual Primary Completion Date : June 2011
Actual Study Completion Date : August 2011

Resource links provided by the National Library of Medicine

MedlinePlus related topics: Psoriasis

Group/Cohort Intervention/treatment
Online support user Behavioral: Online support group
Joining online support group
Other Name: Online social network, virtual online community

Primary Outcome Measures :
  1. Demographic profile of online support users [ Time Frame: 3 months ]
    The sociodemographic profile of the respondents such as age (mean, range), sex, civil status, level of formal education, employment status were described.

  2. Disease characteristics of online support users [ Time Frame: 3 months ]
    The overall health status (poor, average, good), psoriasis severity (mild, moderate, severe), duration of illness of online support groups were evaluated.

Secondary Outcome Measures :
  1. Activities performed and extent of participation of online support users [ Time Frame: 3 months ]
    Participants were also asked regarding their attitudes and experiences with online communities, length of use, log-on frequency and nature of online activities.

  2. Empowering processes and outcomes experienced by online support group members [ Time Frame: 3 months ]
    The frequency with which empowering processes (exchange information, find recognition, share experiences, encounter emotional support, help others) occurred were measured on a 3-point scale (1-seldom to never, 2-sometimes, 3-often). The outcomes experienced (are better informed, feel more confident in relationship with physician, have improved acceptance, feel more confident with treatment, have enhanced social well-being, have increased optimism and control over the future, have enhanced self-esteem) were assessed on a 3-point scale (1-disagree, 2-neither agree nor disagree, 3-agree).

  3. Correlation of variables [ Time Frame: 3 months ]
    Intervariable correlation (overall health status/psoriasis severity with frequency/duration of usage, educational level/employment status with frequency of usage) were also be assessed for significance.

Information from the National Library of Medicine

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Ages Eligible for Study:   Child, Adult, Older Adult
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   Yes
Sampling Method:   Non-Probability Sample
Study Population
Members of virtual psoriasis local support networks (Yahoo-based Psoriasis Philippine Online Community, Inc. and Facebook Psoriasis Online Support Group) will be the main subjects of the study.

Inclusion Criteria:

  • diagnosis of psoriasis
  • individuals who are willing to complete the online survey
  • proficiency in English
  • membership in an online psoriasis support network

Exclusion Criteria:

  • nonmembers
  • unwilling to participate in the study

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its identifier (NCT number): NCT01465061

Sponsors and Collaborators
University of the Philippines
Philippine Dermatological Society
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Principal Investigator: Charlene U Ang-Tiu, MD University of the Philippines-Philippine General Hospital Section of Dermatology
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Responsible Party: Charlene U. Ang-Tiu, Dermatology resident, University of the Philippines Identifier: NCT01465061    
Other Study ID Numbers: MED01032011
First Posted: November 4, 2011    Key Record Dates
Last Update Posted: November 4, 2011
Last Verified: November 2011
Keywords provided by Charlene U. Ang-Tiu, University of the Philippines:
Online social network
Additional relevant MeSH terms:
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Skin Diseases, Papulosquamous
Skin Diseases