Pennsylvania Idiopathic Pulmonary Fibrosis Research Registry (PA-IPF)
|ClinicalTrials.gov Identifier: NCT00540475|
Recruitment Status : Completed
First Posted : October 8, 2007
Last Update Posted : October 11, 2018
|Condition or disease|
|Idiopathic Pulmonary Fibrosis|
The University of Pittsburgh Medical Center, Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease is the coordination center for the Pennsylvania Idiopathic Pulmonary Fibrosis Statewide Research Registry, the collaborative institutions include: the University of Pennsylvania Health System, Geisinger Health System, and Penn State Milton S. Hershey Medical Center.
The PA-IPF Registry developed into a web site that contains information for patients, health professionals, and families, as well as an Internet-based database that will store information about patients to provide them with guidance about care, research, and support groups close to the area in which they live.
Benefits for membership in the PA-IPF Registry include:
- Staying informed about IPF research news, both nationally and locally.
- Having advance notice of any IPF research in which patients may be eligible to participate.
|Study Type :||Observational [Patient Registry]|
|Actual Enrollment :||2000 participants|
|Target Follow-Up Duration:||5 Years|
|Official Title:||The Pennsylvania Idiopathic Pulmonary Fibrosis State-wide Research Registry|
|Study Start Date :||September 2007|
|Actual Primary Completion Date :||July 2018|
|Actual Study Completion Date :||July 2018|
- IPF Disease Course [ Time Frame: 5 years ]Monitor IPF disease course
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00540475
|United States, Pennsylvania|
|Milton S. Hershey Medical Center|
|Hershey, Pennsylvania, United States, 17033|
|University of Pennsylvania Health System|
|Philadelphia, Pennsylvania, United States, 19104|
|Philadelphia, Pennsylvania, United States, 19140|
|Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease|
|Pittsburgh, Pennsylvania, United States, 15213|
|The Center for Health Research at Giesinger Health System|
|Wilkes-Barre, Pennsylvania, United States, 18711|
|Principal Investigator:||Kevin F Gibson, MD||Medical Director, Dorothy P. & Richard P. Simmons Center|