Now Available for Public Comment: Notice of Proposed Rulemaking (NPRM) for FDAAA 801 and NIH Draft Reporting Policy for NIH-Funded Trials
Trial record 1 of 1 for:    NCT01817946
Previous Study | Return to List | Next Study

Myotubular Myopathy Genetic Testing Study

This study is currently recruiting participants. (see Contacts and Locations)
Verified April 2013 by Cure CMD
Valerion Therapeutics, LLC
Congenital Muscle Disease International Registry (CMDIR)
University of Chicago
Children's Hospital Boston
Information provided by (Responsible Party):
Cure CMD Identifier:
First received: March 19, 2013
Last updated: January 28, 2014
Last verified: April 2013
No Study Results Posted on for this Study
  Study Status: This study is currently recruiting participants.
  Estimated Study Completion Date: March 2015
  Estimated Primary Completion Date: March 2014 (Final data collection date for primary outcome measure)