National Registry of Veterans With Amyotrophic Lateral Sclerosis and DNA Bank - No Study Results Posted - ClinicalTrials.gov

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National Registry of Veterans With Amyotrophic Lateral Sclerosis and DNA Bank (ALS Registry)

This study has been completed.

Study NCT00076154 Information provided by Department of Veterans Affairs

First Received: January 14, 2004 Last Updated: October 7, 2009 History of Changes

No Study Results Posted on ClinicalTrials.gov for this Study

About Study Results Reporting on ClinicalTrials.gov

Study Status:	This study has been completed.
Study Completion Date:	September 2009
Primary Completion Date:	September 2007 (Final data collection date for primary outcome measure)

Publications:

Allen KD, Kasarskis EJ, Bedlack RS, Rozear MP, Morgenlander JC, Sabet A, Sams L, Lindquist JH, Harrelson ML, Coffman CJ, Oddone EZ. The National Registry of Veterans with amyotrophic lateral sclerosis. Neuroepidemiology. 2008;30(3):180-90. Epub 2008 Apr 18.

DiMartino L, Allen KD, Kasarskis E, Lindquist JH, Coffman CJ, Oddone EZ; National Registry of Veterans with ALS. Characteristics associated with participation in DNA banking: The National Registry of Veterans with ALS. Contemp Clin Trials. 2007 Sep;28(5):572-82. Epub 2007 Jan 27.

Pastula DM, Coffman CJ, Allen KD, Oddone EZ, Kasarskis EJ, Lindquist JH, Morgenlander JC, Norman BB, Rozear MP, Sams LA, Sabet A, Bedlack RS. Factors associated with survival in the National Registry of Veterans with ALS. Amyotroph Lateral Scler. 2008 Aug 7;:1-7 [Epub ahead of print]

Schmidt S, Allen KD, Loiacono VT, Norman B, Stanwyck CL, Nord KM, Williams CD, Kasarskis EJ, Kamel F, McGuire V, Nelson LM, Oddone EZ. Genes and Environmental Exposures in Veterans with Amyotrophic Lateral Sclerosis: the GENEVA study. Rationale, study design and demographic characteristics. Neuroepidemiology. 2008;30(3):191-204. Epub 2008 Apr 18.

Khishchenko N, Allen KD, Coffman CJ, Kasarskis EJ, Lindquist JH, Morgenlander JC, Norman BB, Oddone EZ, Rozear MP, Sabet A, Sams L, Bedlack RS. Time to diagnosis in the National Registry of Veterans with Amyotrophic Lateral Sclerosis. Amyotroph Lateral Scler. 2009 Jan 19;:1-8 [Epub ahead of print]

Kasarkis EJ, Dominic K, Oddone EZ. The National Registry of Veterans with Amyotrophic Lateral Sclerosis: Department of Veterans Affairs Cooperative Studies Program (CSP) #500a. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004 Sep;5 Suppl 1:129-32.

Kasarskis EJ, Dempsey-Hall L, Thompson MM, Luu LC, Mendiondo M, Kryscio R. Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R. Amyotroph Lateral Scler Other Motor Neuron Disord. 2005 Mar;6(1):50-4.

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