NYU/Bellevue WTC Health Impacts Research Registry
The destruction of the World Trade Center (WTC) resulted in long-term adverse health effects for workers and volunteers involved in rescue and recovery (2002; 2004a; 2004b; Skloot et al. 2004). In addition, increasing data demonstrate persistent adverse health effects for local residents as well as for the responders (Lin in press; Reibman 2004).
Screening programs for responders, funded by the CDC-NIOSH have included extensive medical, mental and exposure histories, combined with physical examinations, chest x-rays, and spirometry Screening programs for health effects in residents have been much more limited and have only studied selective populations; to date, our studies are the most comprehensive - and consisted of simple questionnaires with limited spirometry. The results of these studies, have now led to the recognition of extensive adverse health outcomes in the residential, as well as the worker and volunteer populations.
Despite this information, many individuals, workers as well as residents, may not recognize that their ailments may be related to WTC exposures. Few programs exist that educate these populations as well as provide supportive services for medical treatment. Individuals with medical insurance may have sought care among health care providers but many individual practitioners have varying expertise in the predominantly pulmonary and mental health disorders experienced by these populations. Those lacking insurance may have gone untreated. The goal of this application will therefore be to address this unmet need by providing a multi-disciplined, comprehensive evaluation and treatment program for individuals with suspected World Trade Center-related health issues.
Target populations who will participate in the Bellevue Hospital Red Cross WTC Health Impacts Program will include:
- residents (children and adults) of Lower Manhattan communities at the time of the attacks, who remained or returned to their homes soon after the attacks
- individuals involved in debris removal in surrounding commercial and residential buildings,
- individuals involved in rescue, recovery and debris removal who have been previously screened through the World Trade Center Worker and Volunteer Medical Screening Program and are in need of continued treatment.
Goals of the Bellevue Red Cross WTC Health Impacts program will be to provide:
Medical evaluation and treatment for suspected WTC-associated illness Initial medical evaluation or medical consultation with an integrated mental health and social service needs assessment Subspecialty testing or consultation for diagnosis and further evaluation of suspected WTC-associated illness
- Treatment for WTC-associated limited or prolonged illness
Development of a multi-discipline referral program with preferred practitioners for:
- Specialty care health needs
- Primary care health needs
- Mental health care needs
- Collaboration with WTC Worker and Volunteer Medical Screening and Monitoring Program to develop practice suggestions for further evaluation and diagnostic testing, interpretation of testing, and treatment of individuals with suspected WTC-associated health problems
Effects of World Trade Center Attacks (9/11)
- Tracking the development pulmonary disease post-WTC disaster events of September 11, 2001. [ Time Frame: Since 2001 ] [ Designated as safety issue: No ]
Biospecimen Retention: None Retained
N/A - Research registry to track development of disease and diagnosis of patients exposed to post-9/11 WTC dust
|Study Start Date:||August 2005|
|Estimated Primary Completion Date:||January 2015 (Final data collection date for primary outcome measure)|
Please refer to this study by its ClinicalTrials.gov identifier: NCT01751711
|Contact: Joan Reibman, MDfirstname.lastname@example.org|
|United States, New York|
|New York, New York, United States, 10016|
|Contact: Bellevue Asthma Clinic 212-562-1734|
|Principal Investigator: Joan Reibman, MD|