Self-esteem and Neuro-urological Follow-up in Patients With Spina Bifida or Spinal Cord Injury (ESTIME)

• Measure of the global self-esteem by the Rosenberg scale (RSES) [ Time Frame: At day 0 ] [ Designated as safety issue: No ]
  Score range : 10 - 40. High scores indicate hight self esteem.
  
  

• Evaluation of depression and anxiety by Hamilton's scale (HAD) [ Time Frame: At day 0, at month 6 ] [ Designated as safety issue: No ]
  Score range : 0 - 21. High scores indicate a hight level of symptoms.
  
  
• Neuropsychological evaluation (WAIS-III battery composite GREFEX, CVLT) [ Time Frame: At day 0 ] [ Designated as safety issue: No ]
  Battery of test exploring executives functions. High scores indicate high level of executive functions.
  
  
• Rating Scale vesico-sphincter and anorectal function (ISCOS) [ Time Frame: At day 0, at month 6 ] [ Designated as safety issue: No ]
  High scores indicate high vesico-sphincter and anorectal dysfunction
  
  
• Evaluation scale for the achievement of self catheterizing [ Time Frame: At day 0, at month 6 ] [ Designated as safety issue: No ]
  14 binary items
  
  
• Scale functional mobility and transfers (SCIM III) [ Time Frame: At day 0 ] [ Designated as safety issue: No ]

  The SCIM is a disability scale in order to describe patients' ability to accomplish activities of daily living and to make functional assessments of this population more sensitive to changes.

  SCIM-III is comprised of 19 items in 3 subscales, which are:

  (i) self-care (sub-score 0-20); (ii) respiration and sphincter management (sub-score 0-40); (iii) mobility (sub-score 0-40). The mobility subscale is further sub-divided to assess mobility "in room and toilet" and for "indoors and outdoors, on an even surface".

  The total score ranges from 0 to 100.

  
  
• Measure of the global self-esteem by the Rosenberg scale (RSES) [ Time Frame: At month 6 ] [ Designated as safety issue: No ]
  Score range : 10 - 40. High scores indicate hight self esteem.
  
  
• Observance of the appointment [ Time Frame: At month 6 ] [ Designated as safety issue: No ]
  
• Observance of holding of the mictionnel catalog [ Time Frame: At month 6 ] [ Designated as safety issue: No ]
  
• Measure of auto-efficiency experienced scale for Medullary Injured (MSES) [ Time Frame: At Day 0 ] [ Designated as safety issue: No ]
  • 16 items ranging from 1 to 7
  • Range 16 - 112
  • High scores correspond to low level of percieved auto-efficiency
  
  

With improved life expectancy over the last fifty years, spina bifida has become a disease of the adult. The risk of developing a terminal renal insufficiency is eight times higher than the risk in the general population and twice as important as in acquired spinal cord injury. This risk continues to evolve with advancing age.

One of the major stakes for these patients is the preservation of a regular follow-up of uro-nephrologicals risk factors and of a respect for the rules of self management of their neurological bladder. However, some studies report that nearly two thirds of these patients are not monitored at regular neuro-urological in the adulthood. Different psychosocial determinants were analyzed as potential markers of the impact of chronic diseases from childhood to adulthood and could account for the disparity of follow-up and access to healthcare. Among these, the self-esteem is a psychological dimension of analysis particularly relevant within the framework of chronic states inherited from the childhood.

The investigators formulate the hypothesis that global self-esteem and lower perceived self-efficacy may be a causal predictive factor of a reduced access to the continence and a lower compliance monitoring in adult patients with a spina bifida.