Maximizing Independence at Home (MIND at Home)
Funded by a unique private philanthropy and public coalition through THE ASSOCIATED: Jewish Community Federation of Baltimore, this project seeks to develop effective ways to deliver dementia care to older adults with memory disorders who live in the community. MIND at Home is an 18 month intervention research study whose goals are two-fold: To partner with community organizations to help proactively identify older adults in the Baltimore community who may need help related to memory disorders; To find out if providing person-centered, coordinated care will help older adults with memory disorders remain at home longer, as well other possible benefits. The investigators hypothesize that individuals with memory disorders that receive person-centered, coordinated care will have fewer unmet dementia-related needs, improved quality of life and function, fewer behavioral and depressive symptoms, and will be able to remain in their homes longer compared to individuals who receive augmented usual care.
Behavioral: care coordination
|Study Design:||Allocation: Randomized
Intervention Model: Parallel Assignment
Masking: Single Blind (Outcomes Assessor)
Primary Purpose: Treatment
|Official Title:||Maximizing Independence at Home (MIND at Home): Dementia Care at Home Study|
- Change in unmet dementia-related needs from Baseline to 18 months [ Time Frame: 18 months ] [ Designated as safety issue: No ]Unmet dementia-related needs as measured by the Johns Hopkins Dementia Care Needs Assessment (JHDCNA), clinican-based assessment of 21 domains (92 individual items)
- Change in quality of life from Baseline to 18 months [ Time Frame: 18 month ] [ Designated as safety issue: No ]Participant quality of life measured by Quality of Life in Alzheimers Disease (QOL-AD) and Alzheimer's Disease Related Quality of life scale (ADRQL). Caregiver quality of life measured by SF-12.
- length of stay [ Time Frame: 18 months ] [ Designated as safety issue: No ]Length of stay in the community assessed by number of days from initial study assessment to end of study observation or to date that the subject leaves their community-based residence (e.g. move to nursing home, assisted living, death) prior to end of study observation.
- neuropsychiatric behavior symptoms from baseline to 18 months [ Time Frame: 18 month ] [ Designated as safety issue: No ]Neuropsychiatric behavior measured by the Neuropsychiatry Inventory Questionnaire
- day-to-day function from baseline to 18 months [ Time Frame: 18 month ] [ Designated as safety issue: No ]Day-to-day function assessed by the Instrumental Activities of Daily Living Scale and the Psycho-geriatric Dependency Rating Scale
- health care utilization from baseline to 18 months [ Time Frame: 18 month ] [ Designated as safety issue: No ]Inpatient, residential, Alzheimer Disease-related, mental health, and medical health care use measured by the SURFS
- depression from baseline to 18 months [ Time Frame: 18 month ] [ Designated as safety issue: No ]Participant depression measured by the Cornell Scale for Depression (CSDD) in Dementia. Caregiver depression measured by the Geriatric Depression Scale (GDS).
|Study Start Date:||July 2008|
|Study Completion Date:||December 2012|
|Primary Completion Date:||December 2011 (Final data collection date for primary outcome measure)|
|No Intervention: Augmented Usual Care||
Behavioral: care coordination
dementia-related care coordination
Please refer to this study by its ClinicalTrials.gov identifier: NCT01283750
|United States, Maryland|
|Johns Hopkins University|
|Baltimore, Maryland, United States, 21205|
|Principal Investigator:||Quincy M Samus, PhD||Johns Hopkins University|