Duration of Untreated Psychosis (DUP) and Pathways to Care in Nordland
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Purpose
During the 1990s, evidence began to emerge of the long duration of untreated illness prior to receiving treatment for patients with psychotic disorders. Studies across the world on first episode psychosis have consistently found an average of 1 - 2 years between the onset of psychotic symptoms and the start of treatment. Lengthy treatment delay has immediate implications such as unnecessary distress for patients and families, and may also compromise potential recovery when treatment is initiated.By understanding how and why substantial delays occur the investigators may be able to better design interventions to facilitate better earlier treatment. The components of DUP can be conceptualised as comprising 3 distinct intervals: help-seeking delay, referral delay and delay in mental health services. In this study the primary aim is to establish the level of DUP in nordland, and explore the components of this variable. Help-seeking delay will be investigated by interviewing patients presenting at the central mental health hospital in Nordland about their psychosis onset and pathways to care. Referral delay will be investigated by a questionnaire about the referral pratices among GPs in Nordland. Delays in mental health services will be investigated by focus group interviews with leaders and professionals at the 7 community mental health centers in Nordland. This knowledge is believed to be crucial for developing services that can reduce DUP and give this patient population earlier access to adequate treatment.
| Condition |
|---|
|
Schizophrenia and Disorders With Psychotic Features Affective Psychosis, Bipolar Psychoses |
| Study Type: | Observational |
| Study Design: | Observational Model: Cohort Time Perspective: Retrospective |
| Official Title: | Duration of Untreated Psychosis (DUP) and Pathways to Care in Patients With First- and Multiple Episodes of Psychosis in Nordland - a Study of the Components of DUP in a Rural Mental Health System |
- Duration of untreated psychosis [ Time Frame: retrospective, lifetime ] [ Designated as safety issue: No ]Nottingham Onset Schedule
| Estimated Enrollment: | 120 |
| Study Start Date: | September 2010 |
| Estimated Study Completion Date: | September 2013 |
| Estimated Primary Completion Date: | September 2013 (Final data collection date for primary outcome measure) |
Eligibility| Ages Eligible for Study: | 16 Years to 35 Years |
| Genders Eligible for Study: | Both |
| Accepts Healthy Volunteers: | No |
| Sampling Method: | Non-Probability Sample |
This study is a naturalistic cohort study. All patients registrered in a 3 year period with the acute and/or rehabilitation units will be invited to participate.
The eight units (acute and rehabilitation) will be able to provide a potential sample size of 150 participants over the 3-year period of the study. We are confident of minimal attrition and assume that we will achieve at least 85% follow up. This means that we can expect to have collected data on approximately 120 people.
Inclusion Criteria:
- Any patient presenting with a possible psychotic illness (including schizophrenia, affective psychosis and drug-related psychosis, but excluding organic psychosis).
- Understands and speaks norwegian
Exclusion Criteria:
- Severe learning disability
Contacts and Locations| Contact: Knut W Soergaard, PhD | 75501120 ext 0047 | kso@nlsh.no |
| Contact: Erling I Kvig, Phd student | 75501522 ext 0047 | eik@nlsh.no |
| Norway | |
| Nordland Hospital Trust | Recruiting |
| Bodoe, Norway, 8009 | |
| Contact: Knut W Soergaard, Phd 75501120 ext 0047 kso@nlsh.no | |
| Principal Investigator: Erling I Kvig, psychologist | |
| Principal Investigator: | Knut W. Soergaard, PhD | Nordland Hospital Trust |
More Information
No publications provided
| Responsible Party: | University Hospital of North Norway |
| ClinicalTrials.gov Identifier: | NCT01196858 History of Changes |
| Other Study ID Numbers: | 2009/1426(REK) |
| Study First Received: | September 6, 2010 |
| Last Updated: | April 22, 2013 |
| Health Authority: | Norway:National Committee for Medical and Health Research Ethics Norway: Norwegian Social Science Data Services Norway: Directorate of Health |
Additional relevant MeSH terms:
|
Affective Disorders, Psychotic Bipolar Disorder Mental Disorders Psychotic Disorders |
Schizophrenia Schizophrenia and Disorders with Psychotic Features Mood Disorders |
ClinicalTrials.gov processed this record on May 23, 2013