Study of Support Groups for African-American Breast Cancer Survivors
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Purpose
RATIONALE: A study that evaluates successful Los Angeles-based, peer-led African American breast cancer survivor support groups may help in developing a guide on how to organize and maintain breast cancer support groups.
PURPOSE: This clinical trial is studying support groups for African-American breast cancer survivors.
| Condition | Intervention |
|---|---|
|
Breast Cancer Cancer Survivor |
Other: communication analysis Other: questionnaire administration Procedure: psychosocial assessment and care Procedure: support group therapy |
| Study Type: | Interventional |
| Study Design: | Masking: Open Label |
| Official Title: | Sister Survivor: African American Breast Cancer Coalition |
- Characterization of five established Los Angeles-based, peer-led African American Breast Cancer Survivor (AABCS) support groups [ Designated as safety issue: No ]
- Preliminary "Culturally-Informed Breast Cancer Support Group Guide" on how to organize and maintain support groups [ Designated as safety issue: No ]
- Completion of 3 needs-assessment focus group sessions and 5 key-informant interviews in the Inland Empire [ Designated as safety issue: No ]
| Enrollment: | 74 |
| Study Start Date: | January 2008 |
| Primary Completion Date: | September 2009 (Final data collection date for primary outcome measure) |
OBJECTIVES:
- Characterize five established Los Angeles (LA)-based, peer-led African American Breast Cancer Survivor (AABCS) support groups by identifying and evaluating the successful elements of structure and process that distinguish these groups: the purpose and goals; theories and techniques that are utilized; the structure of the group and implementation of specific goals; the cultural aspects that are incorporated to enhance the efficacy; and similarities and differences among these AABCS support groups.
- Develop a preliminary "Culturally Informed Breast Cancer Support Group Guide" on how to organize and maintain support groups, modeled on the "best model" experiences of the five established LA-based support groups for AABCS.
- Conduct three needs-assessment focus groups and 5 key informant interviews in the Inland Empire to evaluate the psychosocial needs and resources of AABCS in that region.
OUTLINE: At least 10 support group leaders (2 from each support group) undergo semi-structured interviews to elicit information about the needs of breast cancer survivors in their community and the cultural modes of support that are given. Eight to twelve African American Breast Cancer Survivors (AABCS) participate in 5 focus group discussions and complete a questionnaire about their breast cancer and experience with support groups for qualitative and quantitative analysis.
At least 5 Inland Empire community leaders undergo semi-structured interviews to elicit information about the needs of breast cancer survivors in their community. Eight to twelve AABCS from the Inland Empire participate in 3 focus group discussions and complete a questionnaire about their breast cancer and experience with support groups for qualitative and quantitative analysis.
Eligibility| Ages Eligible for Study: | 18 Years and older |
| Genders Eligible for Study: | Female |
| Accepts Healthy Volunteers: | No |
DISEASE CHARACTERISTICS:
Meets 1 of the following criteria:
African American Breast Cancer Survivor (AABCS) meeting 1 of the following criteria:
- A member of 1 of the 5 support groups listed below
- Live in the Inland Empire region of California
A cancer support group leader or facilitator of 1 of the 5 established support groups in Los Angeles:
- Women of Essence (WOE)
- Women of Color (WOC)
- Support Sisters African American Breast Cancer Support Groups
- Sisters
- Celebrate Life
- A community leader knowledgeable about breast cancer support services in the Inland Empire region
PATIENT CHARACTERISTICS:
- Not specified
PRIOR CONCURRENT THERAPY:
- Not specified
Contacts and Locations| United States, California | |
| City of Hope Comprehensive Cancer Center | |
| Duarte, California, United States, 91010-3000 | |
| Principal Investigator: | Kimlin Ashing-Giwa, PhD | Beckman Research Institute |
More Information
Additional Information:
No publications provided
| Responsible Party: | Kimlin Ashing-Giwa, City of Hope Comprehensive Cancer Center |
| ClinicalTrials.gov Identifier: | NCT00949871 History of Changes |
| Other Study ID Numbers: | 07170, P30CA033572, CHNMC-07170, CDR0000642441 |
| Study First Received: | July 29, 2009 |
| Last Updated: | March 4, 2011 |
| Health Authority: | United States: Institutional Review Board |
Keywords provided by City of Hope Medical Center:
|
stage I breast cancer stage II breast cancer stage IIIA breast cancer stage IIIB breast cancer |
stage IIIC breast cancer stage IV breast cancer cancer survivor |
Additional relevant MeSH terms:
|
Breast Neoplasms Neoplasms by Site Neoplasms Breast Diseases Skin Diseases |
ClinicalTrials.gov processed this record on May 16, 2013