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Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers: Patient Perspectives (One-on-one Interviews)

This study has been completed.
Sponsor:
Collaborator:
Canadian Arthritis Network
Information provided by:
Sunnybrook Health Sciences Centre
ClinicalTrials.gov Identifier:
NCT00832949
First received: January 26, 2009
Last updated: January 6, 2011
Last verified: January 2011
History of Changes
  Purpose

Inflammatory arthritis (IA) is a major cause of long-term disability. Due to specialist shortages, failure of primary care providers and individuals to recognize the disease, and lack of awareness of the importance of early intervention, delays to rheumatologic care are common. Peer support models have been used for various health issues and may be one method to assist individuals with early IA to manage their disease and cope with stress. Qualitative research methods (one-on-one interviews) will seek out feedback on a peer support approach and explore the learning needs (informational needs, educational preferences) and opinions about emotional and appraisal support of individuals living with IA, from the perspectives of patients. The data will be analyzed and expressed themes (articulated needs and understandings of interviewee context) will guide the future development of a peer support intervention.


Condition
Arthritis

Study Type: Observational
Official Title: Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers: Patient Perspectives (One-on-one Interviews)

Further study details as provided by Sunnybrook Health Sciences Centre:

Primary Outcome Measures:
  • learning needs (Informational needs and educational preferences) [ Time Frame: o months ] [ Designated as safety issue: No ]

Estimated Enrollment: 10
Study Start Date: January 2009
Study Completion Date: December 2009
Primary Completion Date: December 2009 (Final data collection date for primary outcome measure)
  Show Detailed Description

  Eligibility

Ages Eligible for Study:   18 Years and older
Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population

Patients with inflammatory arthritis

Criteria

Inclusion Criteria:

Patients for one-on-one interviews:

  1. Have a diagnosis of IA from a physician
  2. Able to participate in a 1 hour interview
  3. 18 years of age or older
  4. English-speaking
  5. Immigrants to Canada.
  Contacts and Locations
Please refer to this study by its ClinicalTrials.gov identifier: NCT00832949

Locations
Canada, Ontario
Sunnybrook Health Sciences Centre
Toronto, Ontario, Canada
Sponsors and Collaborators
Sunnybrook Health Sciences Centre
Canadian Arthritis Network
Investigators
Principal Investigator: Mary J Bell, MD, FRCPC Sunnybrook Health Sciences Centre
  More Information

No publications provided

Responsible Party: Mary J Bell, Sunnybrook Health Sciences Centre
ClinicalTrials.gov Identifier: NCT00832949     History of Changes
Other Study ID Numbers: DOCH2 448-2008
Study First Received: January 26, 2009
Last Updated: January 6, 2011
Health Authority: Canada: Ethics Review Committee

Keywords provided by Sunnybrook Health Sciences Centre:
Mixed methods research (qualitative and quantitative)
Peer support
Early inflammatory arthritis
Self-management
Patient education

Additional relevant MeSH terms:
Arthritis
Joint Diseases
Musculoskeletal Diseases

ClinicalTrials.gov processed this record on June 18, 2013