Patient and Family Decision Making in the Palliative Care Setting
The goal of this research study is to learn about any differences in certain health-related preferences between patients with cancer and their families.
The main preferences being studied are how decisions are made about healthcare, as well as how much information people want to know about cancer.
Specifically, researchers will compare questionnaire and interview data from Hispanic-Americans living in the United States (the M. D. Anderson part of this multicenter study) with Hispanics living in Latin America (in particular, Argentina, Chile, and Guatemala).
|Study Design:||Intervention Model: Single Group Assignment
Masking: Open Label
|Official Title:||Patient and Family Decision Making and Information Disclosure Preferences in the Palliative Care Setting: a Multi-Center Survey in Chile, Guatemala, and U.S.|
- Differences in Proportions of Preference for Passive Decision Making [ Time Frame: 6 Years ] [ Designated as safety issue: No ]
|Study Start Date:||March 2008|
|Primary Completion Date:||August 2012 (Final data collection date for primary outcome measure)|
Questionnaire + Interview
Interview lasting about 5-10 minutes.Behavioral: Questionnaire
Questionnaires taking 20-30 minutes to complete.
Other Name: Survey
Show Detailed Description
|United States, Texas|
|UT MD Anderson Cancer Center|
|Houston, Texas, United States, 77030|
|Fundacion FEMEBA - Programa Argentino de Medicina Paliativa - Hospital Tornu|
|Buenos Aires, Argentina|
|Dr. Sotero del Rio Hospital - Catholic University of Chile|
|Santiago, Chile, 8207257|
|Guatemalan Cancer Institute - INCAN|
|Guatemala City, Guatemala|
|Principal Investigator:||Eduardo Bruera, MD||M.D. Anderson Cancer Center|