Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org
The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.
|Study Design:||Time Perspective: Prospective|
|Official Title:||Amyotrophic Lateral Sclerosis Web Based Patient Care Database|
|Study Start Date:||January 2006|
|Study Completion Date:||February 2010|
|Primary Completion Date:||February 2010 (Final data collection date for primary outcome measure)|
Any person who has been diagnosed with ALS by a physician can enroll into this registry.
The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.
|United States, California|
|Forbes Norris MDA/ALS Center|
|San Francisco, California, United States, 94115|
|Principal Investigator:||Robert G Miller, MD||California Pacific Medical Center|