Trial record 11 of 243 for:    "Amyotrophic lateral sclerosis"

Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

This study has been completed.
Sponsor:
Collaborator:
Muscular Dystrophy Association
Information provided by:
Forbes Norris MDA/ALS Research Center
ClinicalTrials.gov Identifier:
NCT00302198
First received: March 10, 2006
Last updated: March 1, 2010
Last verified: February 2010
  Purpose

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.


Condition Intervention
Amyotrophic Lateral Sclerosis
Behavioral: ALS Registry

Study Type: Observational
Study Design: Time Perspective: Prospective
Official Title: Amyotrophic Lateral Sclerosis Web Based Patient Care Database

Resource links provided by NLM:


Further study details as provided by Forbes Norris MDA/ALS Research Center:

Estimated Enrollment: 15000
Study Start Date: January 2006
Study Completion Date: February 2010
Primary Completion Date: February 2010 (Final data collection date for primary outcome measure)
Detailed Description:

Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

  Eligibility

Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population

Any patient diagnosed with ALS by a licensed physician.

Criteria

Inclusion Criteria:

  • There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its ClinicalTrials.gov identifier: NCT00302198

Locations
United States, California
Forbes Norris MDA/ALS Center
San Francisco, California, United States, 94115
Sponsors and Collaborators
Forbes Norris MDA/ALS Research Center
Muscular Dystrophy Association
Investigators
Principal Investigator: Robert G Miller, MD California Pacific Medical Center
  More Information

Additional Information:
No publications provided

ClinicalTrials.gov Identifier: NCT00302198     History of Changes
Other Study ID Numbers: 23.112
Study First Received: March 10, 2006
Last Updated: March 1, 2010
Health Authority: United States: Institutional Review Board

Keywords provided by Forbes Norris MDA/ALS Research Center:
Amyotrophic Lateral Sclerosis

Additional relevant MeSH terms:
Amyotrophic Lateral Sclerosis
Sclerosis
Motor Neuron Disease
Spinal Cord Diseases
Central Nervous System Diseases
Nervous System Diseases
Neurodegenerative Diseases
TDP-43 Proteinopathies
Neuromuscular Diseases
Proteostasis Deficiencies
Metabolic Diseases
Pathologic Processes

ClinicalTrials.gov processed this record on July 23, 2014