Coordinating Center for Caregiver Intervention Trial

Inclusion Criteria:

• Inclusion Criteria:

  1. Age: 21 years or older
  2. Family member of the care recipient
  3. Must live with care recipient or share cooking facilities
  4. Must have a telephone that will enable use of CTIS (Computer Telephone Integration System) system
  5. Must plan to remain in the recruitment area for the duration of the intervention and follow-up
  6. Caregiver role for more than 6 months
  7. Must provide on average 4 hours of supervision or direct assistance per day for the care recipient
  8. Risk Screening Tool: must have a total score of at least 1 for questions 1-3, and a total of at least 2 for questions 4-9

Exclusion Criteria:

1. Non-English, non-Spanish speaking
2. Active treatment (chemotherapy, radiation therapy) for cancer
3. Imminent placement of care recipient into a nursing home or with another caregiver (within 6 months)
4. Involvement in another clinical trial for caregivers
5. Participant in REACH I study

6. SPMSQ:> or = 4 errors*

   • If the caregiver has been inconsistent with answers or repeated answers during the screening process, then the interviewer administers the Short Portable Mental Status Questionnaire (SPMSQ). If the caregiver missed 4 or more questions, he/she was excluded from the study.

Care Recipient Inclusion/Exclusion Criteria

Inclusion Criteria:

a. NINCDS (MD diagnosis) of dementia or cognitive impairment (raw score on MMSE of 23 or less)

Exclusion Criteria:

1. Non-English, non-Spanish speaking
2. History of Parkinson’s Disease or a stroke with no reported decline in memory over the past year
3. Active treatment (chemotherapy, radiation therapy) for cancer
4. More than three acute medical hospitalizations in past year (other than psychiatric or Alzheimer’s Disease related admission)
5. Schizophrenia (onset of delusions before age 45) or other severe mental illness
6. Dementia secondary to head trauma (probable)
7. Blindness or deafness if either disability prohibits them from completion of data collection or participation in the interventions
8. MMSE = 0 and Bedbound (confined to a bed or chair for  22 hours per day, for at least 4 of the past 7 days)
9. Planned nursing home admission in 6 months
10. Participant in REACH I study