Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis
OBJECTIVES: I. Establish a computerized databank to monitor the progress of patients with cystinosis treated with cysteamine.
II. Track and monitor all patients including renal transplant, dialysis and post renal transplants.
|Study Design:||Primary Purpose: Screening|
|Study Start Date:||October 1999|
Data are collected from patients and physicians. Information includes disease, treatment, family history, demographic, and physical exam data. The dates of kidney transplantation and/or dialysis initiation are also recorded.
|United States, California|
|University of California San Diego School of Medicine|
|La Jolla, California, United States, 92093-0652|
|Study Chair:||Jerry A. Schneider||University of California, San Diego|